Laugh Always Spotlight

Laugh Always Spotlight Edition: Daily Life of an Epileptic Person

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The Laugh Always Spotlight Edition features guest posts from members of the Laugh Always Ambassador Community. Laugh Always has been created to highlight those difficult journeys and to celebrate the badass people that live to share their journey. I welcome you to the third edition of the Laugh Always Spotlight!

Ariel is back with her second week of guest blogging for Laugh Always.  She shared her story about the loss of a loved one and how you have to find your way through that journey.  She is sharing a story this week about how she lives her day to day life as an epileptic person.  Please read on about how she makes it through.

Living with epilepsy is not easy, but I will say that I have it better than some. There are many people out there that have them multiple times a day to at least once a day. I have only had 5 my entire life, but that is still one time too many for me. When I was in the 3rd grade, I was diagnosed with epilepsy. A memory I will never forget, one that will live on with me forever. I will never forget waking up in my mother’s bed with her staring at me like she had never done before. I had a full blown grand mal seizure in her bed. Both terms I would not understand until later on in my life. My mom had always been a helicopter parent, but after I was diagnosed with epilepsy she was even more of a helicopter parent. The doctors had started me on medication, but I was reluctant to take it. Something about medication has never sat with me well, I still to this day refuse to take any kind of medication even if I have a headache. 

 

In the 5th grade, I was sitting at a computer working hard to finish a paper that was due that day. Little did I know the old computers would give me a seizure, I knew I should have stopped but I wanted to finish the paper. After about 5 minutes of pushing the bad feeling away I fell over on a classmate and had my second full blown grand mal seizure. I did not know what had happened until I woke up in the hospital with both of my parents looking at me fully concerned. From this point forward, I was no longer aloud to use the computers but I had also looked differently to my fellow classmates. I would at this point turn into the kid that no one wanted to be friends with because I was labeled as “different”. 

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I had another seizure in the 7th grade after I went to a slumber party and stayed up all night. This would be a lesson I would learn that I need my sleep. My parents kept me comfortable and relaxed at home, I did not know what had happened until I woke up and they were staring at me with the same concerned look I had seen before. After this seizure I spent years without them, until I went on my first vacation without anyone who knew of my condition around. I spent years not telling friends of my condition for fear they would label me as “different” and not be my friend anymore. And yes, that has actually happened where I told someone about my condition and they not be my friend anymore. Before the vacation I slept for a minimum of approximately an hour before we had to leave to go to the airport. We were so excited we could not sleep, when we arrived to our vacation spot we immediately went out to stroll the beach. 

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Now mind you, I had little to no sleep and I also have a sun sensitivity issue. My sun sensitivity issue led to having a seizure on the beach in front of many strangers. I woke up in the hospital with my friend giving me the same stare that I received from my parents. She called my mom and my mom was crying, I told her I wanted to go home. She simply told me no and that I should continue my vacation and not let the little bump in the road stop me. From this point forward was when I realized I should not be afraid of my condition. I should accept it for what it is, deal with it and overcome it. I still to do this day do not let my condition stop me from doing it. I have learned to wear a hat, even if I think I look silly in it. I have learned to always get sleep, even if I am struggling to sleep. I take naps like a baby if I did not sleep well the night before. 

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My advice for anyone who suffers from seizures or recently was diagnosed with them is to not be afraid. You cannot stop a condition that is out of your hands. Do not let the condition stop you from doing what you want to do, unless it affects your seizures or brings them on. Learning ways to deal and overcome the condition is hard, but once you figure it out life gets easier. Life is meant to be lived and to be lived to the fullest. Also do not let anyone make you feel “different”, you are not alone in this condition. There are many others out there that have this condition. Everyone has something different about them, this condition is out of your control. Life is beautiful and amazing, so are you; remember that.

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**My name is Ariel and I am the creator of Different Frame of Mind blog. My blog focuses on travels with little funds, medical and psychological disorders. I was born in Kansas but currently, reside in North Carolina. I am married and have two wonderful puppies.

I am a bucket list traveler and have plenty to still check off. I have been on a cruise, traveled to 34 different states, swam with the dolphins and so much more since 2010. Join me on my journey on one of the social media links below.

 

Are you someone that suffers from seizures?  What has your experience been?  Please share your story in the comments.

Thank you again to Ariel for guest blogging for the 2nd time!!

 

To read more stories like Ariel’s, please read on ->The World After Depression, Eating Disorder and Anxiety

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lazysundays
Guest

Thank you for sharing your story. It’s so important for the general public to learn about conditions like this so we can be more knowledgeable and understanding. I’m glad you’re doing well and managing your epilepsy. 🙂

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